part one
pg one
once opon a time a girl named ava was born on feubray 13 2003 at 11:00am and she had a trouble life as a kid. pg two ava did not have a reggular life like the other kids she had to do a lot of things as a kid and it was not easy for her. pg three they said that she had trouble breathing and she also had a little trouble hearing. pg four they had to give her hearaids. pg five they had to give her alot ofsurgies they had to give her a shunt surgey , they had to give her a surgey for her trach, they had to put a drill through her neck and then they had to cover the hole untill it heals up. pg six not only did i have a trach and hearing aids and this is something for kids in the CCA crainiofacial group ava had with phifer sydrome its when your bones are not the right size. pg seven although i had to be in the hosptail for a while i got a lot of vistors. pg eight and then after a few things were done we were done after a few months and since my bones were not in the right place ava had to wear a purple metal thing and it was not fun and not comfortbale for her. pg nine as soon as all of that was done ava just had to take pt for a few years and in the year 2011 or 2010 ava was done and thats when ava found out that that her pt person said that she was pregnat with her baby girl. pg ten so ava had a thing that she wore called a tube feed if you dont know what that is it is a thing where it gives you some food and drinks. then in 2011 she was done with it she and now she just drinks and eat like a regular person does.
part two
pg 11 so ava was done with her tube feed now ava has to figure out how to get the trach out it took ten years to get it out and see what happen was is it took a lot of traveling and alot of surgies but she'll fight for anything that she has to do and just keep going untill she makes her mark. in the year 2013
they said that she passed her sleep study with the cpap and they said that she is ready to go on to the next step sleep without cpap it was amazing when she heard it she was so happy. Then in the year 2013 august 20 she got her trach pulled out by her doctor the hard part for her was pushes on the bandage because shes used to not doing that. pg 12 ava had to see alot of doctors and nurses it was really fun talking to them it made me feel like a celbirty. pg 13 after a day ava was aloud to get out they were going to keep her in there for 2 days but she did so well sleeping without the cpap that they let her out a day early everyone was so happy but most of all so was ava. 😃pg 14 ava went to see her grandparents in new york and they saw mike avas uncle her girlfriend would have came but she had work. pg 15 she got two katy perry shirts from him she was so happy and she got a xlphone from her grandparents but for a diffferent reason she got them because she was going to be in band for school. pg 16 by the time school started everyone noticed me without my trach on it was a happy first day for her. in the next two weeks ava was free no more nurse for her anymore. 😃
part three and last part
pg 17 ava is a amazing strong women she came a long way to get everything taken out it is amazing what she finshed she should be proud of her self for making her mark WAY TO GO AVA 👏clapping hands.
The end
a book or first book by ava marie beeler
hey guys its me Ava as you can see i wrote my very first book it is about my jorney growing up as a kid i hope you enjoy it and i cant wait to write another book and i hope you enjoy this book as much as i did writting this bye
love u guys and if you have any advice or any book ideas just tell me in the comment section below bye
from , love Ava
You are so right sweetie. You are an amazing, strong and beautiful girl who will do what she has to no matter what. You are brave. You just do what you have to and never complain. I am so proud to be your Mom...you are my hero. I look forward to your next book.
ReplyDeleteWhoa! Great story! You ARE a celebrity! I think The Adventures Of Ava could be a whole series of books. I bet they would help other little kids who have to deal with cranio facial issues and you could make a million bucks and give me half of it.
ReplyDeleteWow ! That was amazing. Just like you ! How about "Ava Goes To College" ?
ReplyDeleteI think you are an amazing kid, and the world is a better place with you in it.
ReplyDelete